Rhylie getting her IV started before getting her infusion
Rhylie visiting the horses at the horse show
Rhylie is getting a No No which is a soft cast to cover her IV site so that the IV won't move
Rhylie has a knot on her leg which is called Calcinosis
Calcinosis on Rhylie's Leg
Rhylie loves to play with play doh
Rhylie playing with her dad while getting her infusions
Rhylie is prepping for her sedated MRI
Rhylie got a chance to meet Mickey Mouse for her 5th birthday
Rhylie taking her medication before getting her infusion
Rhylie wearing braces to keep her from walking outwards
Rhylie playing with toys to keep her occupied while getting her infusions
Rhylie after getting her treatments
Rhylie when she was a baby in the NICU
Rhylie enjoys playing with toys while getting her treatment
Rhylie getting her infusions
Rhylie's left leg is bent which is called a Contracture due to imflammation of the muscle
Located on Rhylie's left arm is a long discolored streak due to her dermatomyositis
Rhylie is always smiling
Treatment Day
Rhylie is such a happy child even when she's getting her infusions
Rhylie takes gymnastics which is another form of physical therapy calcinosis is visble on both legs
Make a wish granted her a wish of seeing Mickey and Minnie Mouse
Rhylie and Make a Wish volunteers presenting her with gifts
Rhylie and daddy just before her sediated MRI
To show her appreciation Rhylie gave her nurse Courtney a thank you gift
Left leg constracture
Rhylie's left leg is slightly bent which is the cause of muscle damage
Rhylie had a left leg contracture which was a result of muscle damage that caused her left leg to be shorter
Now that you know what Dermatomyositis is let me show you what living with it looks like. I was diagnosed with Juvenile Dermatomyositis at the tender age of 2. My mother and father were shocked, scared, but ready for the challenge! this section will show you photographs of my many sessions of injections to treat juvenile dermatomyositis. I currently still undergo these injections and will have to do so for the rest of my life. Take a look at what my journey has been like!